Searching for Klippel Feil Syndrome Support information? Find all needed info by using official links provided below.
http://klippelfeilsupport.com/
Welcome to Klippel Feil Support! This is a website to provide information and support for adults with Klippel-Feil syndrome. This site includes information about me, what Klippel-Feil syndrome is, links, and an online support group.
https://www.mdjunction.com/klippel-feil-syndrome
The Klippel-Feil Syndrome Support Group is a community of patients, family members and friends dedicated to dealing with Klippel-Feil Syndrome, together.
https://www.diseaseinfosearch.org/disease/4013/support
Klippel-Feil Syndrome Freedom empowers and unites patients and their families through peer support, education, research, and advocacy, for a lifetime of improved health care.
https://www.ninds.nih.gov/Disorders/All-Disorders/Klippel-Feil-Syndrome-Information-Page
Klippel-Feil Syndrome is a rare disorder characterized by the congenital fusion of two or more cervical (neck) vertebrae. It is caused by a failure in the normal segmentation or division of the cervical vertebrae during the early weeks of fetal development.
https://kfsfreedom.wordpress.com/support/
KFS Freedom offers three very active support groups via Facebook: A support group for adults A support group for teens and young adults A support group for parents and caregivers of patients To join, click the appropriate link above and select "join group." Once you are added, you will receive a message in your inbox on…
https://www.chop.edu/conditions-diseases/klippel-feil-syndrome
Klippel-Feil syndrome is a rare bone disorder distinguished by the abnormal fusion of two or more bones in the neck. Children with the disorder may have a short, webbed neck, decreased range of motion in the head and neck area, and fusions in the thoracic spine causing scoliosis and/or kyphosis. Klippel-Feil syndrome forms in utero when genes GDF6 or GDF3 mutate.
https://contact.org.uk/advice-and-support/medical-information/conditions/k/klippel-feil-syndrome/
There is no support group for Klippel-Feil syndrome in the UK. Cross referrals to other entries in The Contact a Family Directory are intended to provide relevant support for those particular features of the disorder. Organisations identified in those entries do not provide support specifically for Klippel-Feil syndrome.
https://ghr.nlm.nih.gov/condition/klippel-feil-syndrome
Oct 29, 2019 · Klippel-Feil syndrome is a bone disorder characterized by the abnormal joining (fusion) of two or more spinal bones in the neck (cervical vertebrae).The vertebral fusion is present from birth. Three major features result from this vertebral fusion: a short neck, the resulting appearance of a low hairline at the back of the head, and a limited range of motion in the neck.
How to find Klippel Feil Syndrome Support information?
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