Searching for Hlhs Support information? Find all needed info by using official links provided below.
http://www.sistersbyheart.org/
Mission Statement Sisters by Heart provides support, education, and empowerment to families affected by Hypoplastic Left Heart Syndrome (HLHS) - from initial diagnosis and beyond. National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC)
https://connect.mayoclinic.org/page/hlhs/tab/resource-9/
Support. The goal of the Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome is to translate hope into solutions by offering the latest advancements to people with HLHS with the ultimate goal of delaying, or even preventing, heart failure.
https://www.cdc.gov/ncbddd/birthdefects/stories/hlhs.html
Hypoplastic left heart syndrome (HLHS) is a birth defect that affects normal blood flow through the heart. As the baby develops during pregnancy, the left side of the heart does not form correctly. To learn what it’s like to live with this condition or how families are affected, read these real stories from people living with hypoplastic left heart syndrome.
https://www.facebook.com/HLHS-Support-Group-118783084859462/
HLHS Support Group. 191 likes · 1 talking about this. Hello, our names are Ryan and Miranda, we had a son (Wyatt), born 2/11/10 with HLHS. He unfortunately passed on August 7th, 2010 due to...Followers: 199
https://pediatrics.aappublications.org/content/136/4/e864
Oct 01, 2015 · These findings support the concept that with improved treatment, there is a growing population of adults with CHDs, including HLHS. Understanding predictors of survival is one step toward caring for this new aging population and adds to the growing literature on resource use and outcomes for persons with CHDs.Cited by: 26
https://www.littlehearts.org/
Little Hearts, Inc. is a national organization dedicated to providing support, education, resources, networking, and hope to families affected by congenital heart defects. Membership consists of families nationwide who have or are expecting a child with a congenital heart defect.
As a parent of a child with HLHS, it is inspiring to know that there are cardiologists and cardiac surgeons who are willing to listen to parents and get their perspective.I know that by being involved in NPC-QIC, I am a part of something that will make a difference for all children with single ventricles.
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