Searching for Hirschsprung Disease Support information? Find all needed info by using official links provided below.
http://hirschsprungs.info/
The Hirschsprung's & Motility Disorders Support Network (HMDSN), is an organization that makes it possible for of ordinary people and families, who's children suffer from Hirschsprung's Disease and other Gastrointestinal motility disorders to support each other.
https://www.niddk.nih.gov/health-information/digestive-diseases/hirschsprung-disease
Hirschsprung disease is a birth defect in which nerve cells are missing at the end of a child’s bowel. In a child with Hirschsprung disease, stool moves through the bowel until it reaches the part lacking nerve cells. At that point, the stool moves slowly or stops.
https://rarediseases.org/rare-diseases/hirschsprungs-disease/
Hirschsprung disease (HSCR) is a birth defect. This disorder is characterized by the absence of particular nerve cells (ganglions) in a segment of the bowel in an infant. The absence of ganglion cells causes the muscles in the bowels to lose their ability to move stool through the intestine (peristalsis).
https://www.mdjunction.com/hirschsprung-disease
The Hirschsprung Disease Support Group is a community of patients, family members and friends dedicated to dealing with Hirschsprung Disease, together.
https://www.facebook.com/Hirschsprungs-Disease-Family-Support-Group-84307459345/
Hirschsprung's Disease Family Support Group. Seven-year-old Johanna became an instant Internet sensation when her mother uploaded a video from the girl’s dance recital. Now, Johanna is using her new-found celebrity to raise awareness for a painful congenital disorder affecting her young brother.Followers: 4.5K
https://www.facebook.com/pages/Hirschsprungs-Disease-Family-Support-Group/84307459345
Hirschsprung's Disease Family Support Group. 4.5K likes. HD develops in children before they are born. It is not caused by anything the mother did while pregnant.And effects 1 out of 5,000 kids.Followers: 4.5K
https://hdfamilysupportgroup.weebly.com/
Hirschsprung's disease causes 25 percent of intestinal obstructions that occur in newborns. Mission - My son was born with this disease in 2004 and somedays I wonder how I got through.This group is to support and encourage other families they are not alone.Also to share tips and tricks of other families who have lived or are living with ...
https://www.help4hd.org.au/
I have set up a non-profit organisation called Help for Hirschsprung Disease to help other families who’s children also suffer from HSCR / bowel disease. This website is an avenue to become informed, connect and share stories, hopefully making the experience for others dealing with HSCR a little easier.
https://www.webmd.com/children/what-is-hirschsprungs-disease
That means the body can’t sense when waste material reaches a certain point. So the waste material gets stuck and forms a block in the system. Hirschsprung’s disease affects about one in every 5,000 newborns. Children with other congenital conditions, such as Down syndrome and heart defects,...
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