Searching for Group Support Trimethylaminuria information? Find all needed info by using official links provided below.
https://www.thinkgenetic.com/diseases/trimethylaminuria/organizations/3925
Are there good support groups for trimethylaminuria? MEBO Research is a public charity based in Florida, USA, with a mission to initiate research in rare conditions, particularly those that cause malodor and to promote awareness about these conditions. MEBO Research includes a community outreach program to assist those affected.
https://www.guidestar.org/profile/13-4165611
Trimethylaminuria Support Group Inc Quick Facts. place. NEW YORK, NY Summary . Programs + Results. Financials . Operations . This organization has not appeared on the IRS Business Master File in a number of months. It may have merged with another organization or ceased operations.Location: NEW YORK, NY 10163
Trimethylaminuria (TMAU) - UK support site and forums. Bringing together people who have TMAU, their friends, families and healthcare Professionals in a caring and supportive environment.
https://www.meboblog.com/2016/10/new-london-tmau-patient-support-group.html
London Metabolic Unit TMAU Patient Support Group. Started in July 2016 by the Adult Metabolic Unit Staff. Expected to meet 3-4 times a year. Karen attended the recently started TMAU patient support group started by UCLH adult metabolic unit.So far the group has met twice (July and October).
https://rarediseases.org/rare-diseases/trimethylaminuria/
Primary trimethylaminuria is a rare metabolic disorder that is inherited as an autosomal recessive genetic trait. Secondary trimethylaminuria occurs as the result of treatment with large doses of dietary precursors of the offending chemical.
https://www.genome.gov/Genetic-Disorders/Trimethylaminuria
Dec 18, 2018 · Trimethylaminuria is a metabolic condition in which an individual is not able to convert trimethylamine into a compound called trimethylamine N-oxide. Trimethylaminuria, has been around for centuries, but has only gained scientific recognition and support in the past 30 years.
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