Searching for Fanconi Anemia Support information? Find all needed info by using official links provided below.
https://www.fanconi.org/explore/family-support-group
FARF moderates a private Facebook support group that allows adults with FA and parents of children with FA to exchange questions and information. An additional private Facebook support group only for adults diagnosed with FA is also available. Finally, a group exclusively for teens with FA is moderated by a few adults with FA.
https://www.fanconihope.org/
In 2008 three parents of affected children, Thomas Carroll, Richard Kawalek and Bob Dalgleish started the Fanconi Hope Charity to fund research into this disease, to help engender consistent best practice treatment across the UK and to provide much-needed support to affected families through the provision of information and improved family contact.
http://www.fanconi.org/explore/support-services
International Fanconi Anemia Treatment and Testing Resource Guide: includes detailed information on treatment and testing centers, including addresses, physicians, and services offered. Family Support Group: a private Facebook support group allows adults with FA and parents of children with FA to exchange questions and information. An additional private Facebook support group only for adults …
https://www.cancertherapyadvisor.com/home/decision-support-in-medicine/hematology/fanconi-anemia-2/
The Fanconi anemia molecular pathway functions in DNA repair. Patients with Fanconi anemia are exquisitely sensitive to DNA damaging agents such as chemotherapy or radiation.
Advancing Fanconi Anemia Science We believe that research is the answer to one day making Fanconi anemia a treatable condition rather than a fatal disease. After years dedicated to gene identification, improving bone marrow transplantation, and uncovering connections to breast and other cancers, FA scientists are now poised to create less toxic ...
https://www.cincinnatichildrens.org/health/f/fanconi-anemia
Nov 01, 2016 · A nonprofit research organization, the Fanconi Anemia Research Foundation Inc., can provide treatment and testing resources as well as additional educational and emotional support. Long-Term Outlook Show
https://www.fanconi.org/contact
Family Support Toll-Free Line (in United States): 1-888-FANCONI or 1-888-326-2664 Fax: 541-687-0548 [email protected]
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