Familial Dysautonomia Support

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Support Us :: Familial Dysautonomia Foundation, Inc.

    https://familialdysautonomia.org/donate
    The Familial Dysautonomia Foundation will not share or sell any personal information (name, address, email address, phone numbers) that you submit through this website or offline with any third party organization without your explicit consent.

Support for Familial Dysautonomia NYU Langone Health

    https://nyulangone.org/conditions/familial-dysautonomia/support
    Emotional Support. Psychologists at NYU Langone offer support for children, adults, and families who are living with familial dysautonomia. Our team can also offer advice about relaxation therapy and other techniques to help children and adults with familial dysautonomia control emotions before they trigger symptoms, such as high blood pressure.

Contact :: Familial Dysautonomia Foundation, Inc.

    https://familialdysautonomia.org/contact-us
    The Familial Dysautonomia Foundation will not share or sell any personal information (name, address, email address, phone numbers) that you submit through this website or offline with any third party organization without your explicit consent.

Familial dysautonomia - Genetics Home Reference - NIH

    https://ghr.nlm.nih.gov/condition/familial-dysautonomia
    Oct 15, 2019 · Familial dysautonomia is a genetic disorder that affects the development and survival of certain nerve cells. The disorder disturbs cells in the autonomic nervous system, which controls involuntary actions such as digestion, breathing, production of tears, and the regulation of blood pressure and body temperature.

Familial dysautonomia Genetic and Rare Diseases ...

    https://rarediseases.info.nih.gov/diseases/7581/familial-dysautonomia
    63 rows · Nov 05, 2013 · Familial dysautonomia, also called hereditary sensory and autonomic …

Dysautonomia International: Find a Support Group

    http://www.dysautonomiainternational.org/page.php?ID=24
    We know how valuable it can be for patients and caregivers to connect with others in their own community who are facing similar challenges. That is why we have compiled the following list of volunteer-led local dysautonomia support groups. Please note that Dysautonomia International cannot verify the accuracy of information posted on the groups.

Familial Dysautonomia Contact

    https://contact.org.uk/advice-and-support/medical-information/conditions/f/familial-dysautonomia/
    Familial Dysautonomia United Kingdom (FDUK) Email: [email protected] www.familialdysautonomia.co.uk. The Society is a Registered Charity in England and Wales No. 285399 (previously known as the Dysautonomia Society of Great Britain). It provides information and support for individuals and families affected by Familial Dysautonomia in the UK.

Current Treatments in Familial Dysautonomia

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4236240/
    Familial dysautonomia (FD) is a rare hereditary sensory and autonomic neuropathy (type III). The disease is caused by a point mutation in the IKBKAP gene that affects the splicing of the elongator-1 protein (also known as IKAP). Patients have dramatic ...Cited by: 28

Familial dysautonomia - Wikipedia

    https://en.wikipedia.org/wiki/Familial_dysautonomia
    Familial dysautonomia (FD) is a disorder of the autonomic nervous system which affects the development and survival of sensory, sympathetic and some parasympathetic neurons in the autonomic and sensory nervous system resulting in variable symptoms, including insensitivity to pain, inability to produce tears, poor growth and labile blood pressure (episodic hypertension and postural hypotension).Other names: Riley–Day syndrome and Hereditary …



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