Searching for Fabry Support information? Find all needed info by using official links provided below.
Information about the group and this disease. Join the group free of charge and receive a newsletter.
https://www.fabrydisease.org/
As an IRS 501(c)(3) non-profit support organization we rely on donations from organizations and individuals to provide meaningful support and assistance programs to people/families with Fabry disease. Please give generously! Thank you to our corporate and foundation sponsors as well as our many individual donors.
https://www.fabrazyme.com/resources-and-support
Patient Support. Comprehensive support for patients with Fabry disease. CareConnectPSS®—personalized support services for patients—represents Sanofi Genzyme’s more than 25-year commitment to supporting the rare disease community. CareConnectPSS is designed to support each patient’s unique journey.
https://www.mapquest.com/us/missouri/fabry-support-information-8108849
Fabry Support & Information Group ( FSIG ) is a 501 ( c ) ( 3 ) nonprofit organization. Our mission is to raise awareness of Fabry disease and its symptoms. The FSIG website provides mutual self-help by linking patients and family members/caregivers. In this way they can support …Location: 108 NE 2nd St, Concordia, 64020, MO
https://www.facebook.com/Fabry.org
Fabry Support & Information Group, Concordia, MO. 929 likes. Founded in 1996, this group was created by Fabry patients to share information with others suffering from the disease and their families...4.7/5(2)
https://www.mydna.life/fabry/
The Fabry Genetic Support Service (FGSS) is a dedicated genetic counselling service for patients with Fabry disease and their relatives. How genetic counselling can help patients with Fabry disease The genetic counselling process provides information about the genetics and inheritance of Fabry disease.
https://fabryconnect.fabryfacts.com/fabry-resources
Get support, learn more, and connect to others living with Fabry. There are many Fabry disease-related support and education groups. They can help you learn more about Fabry disease, connect you to others with the disease, and keep you updated about the latest developments in Fabry disease.
https://www.webmd.com/a-to-z-guides/fabry-disease
WebMD looks at the causes, symptoms, and treatment of Fabry disease, an inherited condition that brings on a variety of symptoms, including pain in the hands and feet.
http://www.fabrynetwork.org/
Fabry is a defective gene in the X-chromosome. The diagnosis of Fabry Disease in one family member may lead to the evaluation and diagnosis in other relatives. Wide network of Fabry Patient Organisations. FIN purpose is to collaborate, communicate and promote best practices to support those affected by Fabry …
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