Fabry Support

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Fabry Support & Information Group

    http://www.fabry.org/
    Information about the group and this disease. Join the group free of charge and receive a newsletter.

Fabry Disease Community Announcements

    https://www.fabrydisease.org/
    As an IRS 501(c)(3) non-profit support organization we rely on donations from organizations and individuals to provide meaningful support and assistance programs to people/families with Fabry disease. Please give generously! Thank you to our corporate and foundation sponsors as well as our many individual donors.

Fabry Disease Resources and Support

    https://www.fabrazyme.com/resources-and-support
    Patient Support. Comprehensive support for patients with Fabry disease. CareConnectPSS®—personalized support services for patients—represents Sanofi Genzyme’s more than 25-year commitment to supporting the rare disease community. CareConnectPSS is designed to support each patient’s unique journey.

Fabry Support & Information 108 NE 2nd St Concordia, MO ...

    https://www.mapquest.com/us/missouri/fabry-support-information-8108849
    Fabry Support & Information Group ( FSIG ) is a 501 ( c ) ( 3 ) nonprofit organization. Our mission is to raise awareness of Fabry disease and its symptoms. The FSIG website provides mutual self-help by linking patients and family members/caregivers. In this way they can support …Location: 108 NE 2nd St, Concordia, 64020, MO

Fabry Support & Information Group - Home Facebook

    https://www.facebook.com/Fabry.org
    Fabry Support & Information Group, Concordia, MO. 929 likes. Founded in 1996, this group was created by Fabry patients to share information with others suffering from the disease and their families...4.7/5(2)

Fabry Genetic Support Service myDNA

    https://www.mydna.life/fabry/
    The Fabry Genetic Support Service (FGSS) is a dedicated genetic counselling service for patients with Fabry disease and their relatives. How genetic counselling can help patients with Fabry disease The genetic counselling process provides information about the genetics and inheritance of Fabry disease.

FabryConnect Fabry resources

    https://fabryconnect.fabryfacts.com/fabry-resources
    Get support, learn more, and connect to others living with Fabry. There are many Fabry disease-related support and education groups. They can help you learn more about Fabry disease, connect you to others with the disease, and keep you updated about the latest developments in Fabry disease.

Fabry Disease: Causes, Symptoms, and Treatment

    https://www.webmd.com/a-to-z-guides/fabry-disease
    WebMD looks at the causes, symptoms, and treatment of Fabry disease, an inherited condition that brings on a variety of symptoms, including pain in the hands and feet.

Fabry International Network

    http://www.fabrynetwork.org/
    Fabry is a defective gene in the X-chromosome. The diagnosis of Fabry Disease in one family member may lead to the evaluation and diagnosis in other relatives. Wide network of Fabry Patient Organisations. FIN purpose is to collaborate, communicate and promote best practices to support those affected by Fabry …



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