Searching for Fabry Disease Support information? Find all needed info by using official links provided below.
https://www.fabrydisease.org/
As an IRS 501(c)(3) non-profit support organization we rely on donations from organizations and individuals to provide meaningful support and assistance programs to people/families with Fabry disease. Please give generously! Thank you to our corporate and foundation sponsors as well as our many individual donors.
Information about the group and this disease. Join the group free of charge and receive a newsletter.
https://www.fabrazyme.com/resources-and-support
Support networks Fabry Disease Information A Sanofi Genzyme-sponsored website with extensive information on Fabry... Fabry Registry Information for patients and practitioners on this Sanofi Genzyme-sponsored patient... FSIG – Fabry Support & Information Group FSIG is a nonprofit organization ...
https://www.fabrydisease.info/support/
The Fabry International Network (FIN) works with patient organisations to help support people affected by Fabry disease. Visit FabryNetwork.org to find support groups in your area. More information on Fabry disease Click on the boxes to download leaflets on the topics listed below.
https://fabryconnect.fabryfacts.com/fabry-resources
Fabry Support & Information Group: This organization is committed to raising awareness about Fabry disease and its symptoms. It provides support and encouragement to patients and their families.
https://www.discoverfabry.com/
To help you cope with these feelings, there are support groups specifically for people with Fabry disease, as well as support groups for rare diseases generally. Chronic pain/pain attacks Occasional episodes of intense, burning pain that usually start in the hands and feet, …
https://www.webmd.com/a-to-z-guides/fabry-disease
Fabry disease runs in families. It can have lots of different symptoms, including pain in the hands and feet and a specific kind of rash. When you have Fabry disease, a certain type of fatty substance builds up in your body. It narrows your blood vessels, which can hurt your skin, kidneys, heart, brain, and …
https://ghr.nlm.nih.gov/condition/fabry-disease
Oct 01, 2019 · Fabry disease is an inherited disorder that results from the buildup of a particular type of fat, called globotriaosylceramide, in the body's cells. Beginning in childhood, this buildup causes signs and symptoms that affect many parts of the body. Characteristic features of Fabry disease include episodes of pain,...
https://rarediseases.org/rare-diseases/fabry-disease/
Fabry disease is a rare inherited disorder of glycosphingolipid (fat) metabolism resulting from the absent or markedly deficient activity of the lysosomal enzyme, α-galactosidase A (α-Gal A). This disorder belongs to a group of diseases known as lysosomal storage disorders.
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