Searching for Edwards Syndrome Support Ireland information? Find all needed info by using official links provided below.
https://www.softireland.com/
Set up by parents for parents of Trisomy children, SOFT, the Support Organisation for Trisomy, in Ireland, is a voluntary group dedicated to providing support for families of children born with Patau’s Syndrome (Trisomy 13), Edwards’ Syndrome (Trisomy 18) and related chromosomal disorders.
https://contact.org.uk/advice-and-support/medical-information/conditions/e/edwards-syndrome/
The Organisation is a Registered Charity in England and Wales No. 1002918. It provides information and support for families affected by Trisomy 13 (Patau's Syndrome), Trisomy 18 (Edwards' Syndrome) and related disorders, including prenatal information and bereavement support. Group details last updated November 2016.
http://www.softireland.com/about-us/
SOFT Ireland Registered Charity Number (RCN) 20027094 Charity Reference Number (CHY) 10554. The SUPPORT ORGANISATION FOR TRISOMY (S.O.F.T.) was founded in Ireland in 1991 as a voluntary group dedicated to providing support for families of children born with the chromosomal disorders – Patau’s Syndrome or Trisomy l3 and Edwards’ Syndrome or Trisomy 18.
https://www.trisomy18.org/
Working together, we ensure families have the support they need and progress is made in understanding and treating Trisomy 18 through research. T18F brings hope to families and their children coping with Trisomy 18 by accelerating investments in research, building community and shaping dialogue in the medical and research communities.
https://en.wikipedia.org/wiki/Edwards_syndrome
Edwards syndrome, also known as trisomy 18, is a genetic disorder caused by the presence of a third copy of all or part of chromosome 18. Many parts of the body are affected. Babies are often born small and have heart defects.Causes: Third copy of chromosome 18 (usually new …
https://www.independent.ie/lifestyle/health/against-all-odds-26517562.html
Against all odds As a baby born with Edwards' syndrome, Elaine Fagan was only given days to live, but the 23-year-old has managed to confound all medical expectations, says Joy Orpen
https://www.nhs.uk/conditions/edwards-syndrome/
Edwards' syndrome, also known as trisomy 18, is a rare but serious genetic condition that causes a wide range of severe medical problems. Sadly, most babies with Edwards' syndrome will …
About Soft UK. SOFT UK was founded in 1990 by two mothers, Christine Rose and Jenny Robbins. They had discovered first-hand that there was a lack of support and information for families affected by Trisomy 13 (Patau’s syndrome), Trisomy 18 (Edwards’ syndrome) and related disorders.
https://www.epainassist.com/genetic-disorders/edwards-syndrome
Oct 04, 2017 · Edwards Syndrome, which is commonly known by the name of Trisomy 18, is a rare genetic disorder in which the affected child tends to have extra 18th chromosome. Edwards Syndrome is so severe that in majority of the conditions the child succumbs to this condition before birth. Know the causes, symptoms, treatment, life expectancy and prognosis of Edwards Syndrome.
How to find Edwards Syndrome Support Ireland information?
Follow the instuctions below:
- Choose an official link provided above.
- Click on it.
- Find company email address & contact them via email
- Find company phone & make a call.
- Find company address & visit their office.
