Searching for Dystonia Support Nz information? Find all needed info by using official links provided below.
http://www.dystonia.org.nz/
The Area Contact Persons are listed both geographically and by type of dystonia. When contacting them by email please put ‘Dystonia’ in the subject line to minimise the risk that your message is treated as spam. For information about a support group in your area please e-mail [email protected]
http://www.dystonia.org.nz/?page_id=25972
The Area Contact Persons are listed both geographically and by type of dystonia. When contacting them by email please put ‘Dystonia’ in the subject line to minimise the risk that your message is treated as spam. For information about a support group in your area please e-mail [email protected]
Dystonia is either: Generalised – most common in young patients Focal – starts in adulthood, affecting one or more parts of the body The following members of the NZDPN are available to provide advice and support to others nearby and/or with their form of dystonia.
https://www.healthpoint.co.nz/national-patient-support-groups/national-patient-support-group/new-zealand-dystonia-patient-network-inc-1/
Dystonia is not a single disease but a syndrome- a set of symptoms that cannot be attributed to a single cause but share common elements. Some forms of dystonia may affect a specific body area, such as the neck, face, jaw, eyes, limbs or vocal cords. When dystonia affects a specific body area it is called a focal dystonia.
https://www.healthnavigator.org.nz/support/d/dystonia/
Dystonia Patient Network (NZDPN) B e put in contact with other dystonia patients and receive a regular newsletter. Details regarding accessing several support groups in both the North Island and the South Island. Support in the form of information, advice about living with dystonia …
http://www.hopeworks.org.nz/the-brainhub/neurological-disorders-diseases/dystonia
For further information and support, please contact your regional branch of the New Zealand Dystonia Patient Network Incorporated. A full list of contact details can be found at the bottom of this page. Main email: [email protected].
https://www.tomseamancoaching.com/resources/dystonia-organizations-and-support-groups/
The mission of Dystonia Ireland is to promote and encourage scientific research into the causes and treatments of dystonia, raise the level of awareness amongst the general public and the medical profession, and offer support and information to all people with dystonia and their families nationwide. Dystonia Medical Research Foundation (DMRF)
https://dystonia-foundation.org/
Jan 09, 2020 · Dystonia Medical Research Foundation to advance research, treatments, promote awareness, education and find a cure. Dystonia is a neurological movement disorder.
https://www.dystonia.org.au/participate/international-dystonia-organisations/
Dystonia Network of Australia Inc. (DNA) is pleased to announce our Dystonia Awareness Week on the Government Calendar for 2019 is 7th – 14th September inclusive. During this week we hope to hold Dystonia Information Days in at least 2 Tertiary Hospitals in Sydney and host a phone-in forum with a movement disorder specialist.
https://www.dystonia.org.uk/
Reach Out, Reach All is a new Dystonia UK project aiming to produce a series of short films about the milestone moments in our lives that for someone with dystonia present unique challenges. You can help us achieve our goal - support our crowdfunder today! Read more
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