Searching for Distrophy Support information? Find all needed info by using official links provided below.
https://www.webmd.com/children/what-is-muscular-dystrophy
To learn more about muscular dystrophy or find a support group in your area, visit the web site of the Muscular Dystrophy Association. WebMD Medical Reference Reviewed by Jennifer Robinson, ...Author: Stephanie Watson
https://www.mda.org/care/request-services
To request services or support, please complete this short form and one of our trained MDA Resource Specialists will contact you. Or, call us directly at 1-833-ASK-MDA1 (1-833-275-6321). If you live outside the U.S., we may be able to connect you to muscular dystrophy groups in your area, but MDA services are only available in the U.S.
https://www.mda.org/services
Our trained specialists are here to provide one-on-one support for every part of your journey. Send a message below or call us at 1-833-ASK-MDA1 (1-833-275-6321). If you live outside the U.S., we may be able to connect you to muscular dystrophy groups in your area, but MDA services are only available in …
https://www.dailystrength.org/group/muscular-dystrophies
Muscular Dystrophies Support Group. The muscular dystrophies are a group of genetic and hereditary muscle diseases; characterized by progressive skeletal muscle weakness, defects in muscle proteins, and the death of muscle cells and tissue. In some forms of muscular dystrophy, cardiac and smooth muscles are affected.
https://www.cornealdystrophyfoundation.org/support-groups
Fuchs Friends® - The Corneal Dystrophy International Online Support Group The Fuchs' Friends international online support group is a place of support and information for people with all types of Corneal Dystrophy. Fuchs Friends is also compatible with the …
http://www.myotonicdystrophysupportgroup.org/
Myotonic Dystrophy Support Group is a registered charity, founded by Margaret Bowler in 1987, run by volunteers and dedicated to offering the hand of friendship …
https://nyulangone.org/conditions/muscular-dystrophy/support
Muscular dystrophy is a lifelong condition that requires ongoing follow-up care with a doctor who specializes in neuromuscular disorders and conditions. NYU Langone offers a variety of support services for people with muscular dystrophy.
https://www.ninds.nih.gov/Disorders/All-Disorders/Muscular-Dystrophy-Information-Page
Dec 17, 2019 · The NINDS is a member of the Muscular Dystrophy Coordinating Committee (MDCC). ... orthopedic appliances used for support, and corrective orthopedic surgery. In December 2019, the U.S. Food and Drug Administration (FDA) granted accelerated approval to golodirsen injection to treat Duchenne muscular dystrophy (DMD) patients who have a confirmed ...
http://www.fuchs-dystrophy.org/support.html
Corneal dystrophy and Fuchs' Syndrome. Everything about Fuchs' Friends support group has been a grass roots and volunteer effort, and this is just one more step along our path of helping the other "one percenters" to cope with this inherited eye disease.
https://www.myotonic.org/find-support
For those who do not live near one of our existing support groups, our online support community is available at any time. The Myotonic Caregivers Support Group is a confidential, virtual support group that meets monthly via webinars. We also offer Facebook Live Chats on …
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