Searching for Dancing Eye Syndrome Support Trust information? Find all needed info by using official links provided below.
http://dancingeyes.org.uk/
Established in 1997, The Dancing Eye Syndrome Support Trust gives parents - who may feel isolated - an opportunity to talk to others who are in the same situation as themselves and who may have already experienced similar problems.
https://rarediseases.org/organizations/dancing-eye-syndrome-support-trust/
The Dancing Eye Syndrome Support Trust is an international, voluntary organization based in the United Kingdom that is dedicated to providing information and support to individuals and families affected by dancing eye syndrome.
https://rarediseases.info.nih.gov/organizations/525
Dancing Eye Syndrome Support Trust . 78 Quantock Road Worthing West Sussex BN13 2HQ United Kingdom Telephone: 01925 654654 ... OMA syndrome, Opsoclonus-myoclonus-ataxia syndrome, Dancing eye-dancing feet syndrome, Dancing eye syndrome, POMA syndrome, Paraneoplastic opsoclonus-myoclonus, Paraneoplastic opsoclonus-myoclonus-ataxia syndrome
http://dancingeyes.org.uk/information-documents-and-reports/
ABOUT THE TRUST. Established in 1997, The Dancing Eye Syndrome Support Trust gives parents - who may feel isolated - an opportunity to talk to others who are in the same situation as themselves and who may have already experienced similar problems. In this way members can provide mutual support and encouragement to parents whose children have been...
http://beta.charitycommission.gov.uk/charity-details/?regid=1060181&subid=0
Aug 31, 2018 · The Trust is giving families the opportunity to get together at a weekend away in May. The Trust has a closed group on Facebook providing …
https://uk.virginmoneygiving.com/charity-web/charity/finalCharityHomepage.action?charityId=1006375
Dancing Eye Syndrome or DES is known as OMS or Opsoclonus Myoclonus Syndrome outside of the UK. The Dancing Eye Syndrome Support Group became a trust in 1997, giving parents who may feel isolated an opportunity to talk to others who are in the same situation as themselves and who may have already experienced similar problems.
https://www.facebook.com/DESSTFundraising
Opsoclonus Myoclonus Syndrome (OMS), also known as Dancing Eye Syndrome (DES) or Kinsbourne Syndrome...Followers: 72
https://www.gosh.nhs.uk/conditions-and-treatments/conditions-we-treat/opsoclonus-myoclonus-syndrome-dancing-eye-syndrome-omsdes
Once the condition is stable and symptoms are under control, support in school can be helpful. The Dancing Eye Syndrome Trust (details below) produces guidance for teachers which may be helpful in recognising support needed.
How to find Dancing Eye Syndrome Support Trust information?
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