Searching for Cystic Fibrosis Parent Support information? Find all needed info by using official links provided below.
https://www.cff.org/Life-With-CF/Caring-for-a-Child-With-CF/Parent-and-Guardian-Guidance/
As the parent of an infant with CF, you may have many questions and may be feeling a range of emotions. In addition to comprehensive care and medical support, the Cystic Fibrosis Foundation offers the "Pathways to Lifelong Health" video series for …
http://cfri.org/education-support/
CFRI seeks to provide the national cystic fibrosis (CF) community with current information about cystic fibrosis through educational programs and resources, while providing diverse psychosocial support services to the CF community. These programs help educate and provide multi-faceted support to those affected by CF, and include the following.
https://www.cysticfibrosis.org.uk/the-work-we-do/support-available
For parents and families of children with CF we can put you in touch with a trained parent volunteer who can share their experience of life with a child who has cystic fibrosis through our CF Connect scheme. Travel information. Cystic fibrosis should not be a barrier that stops you from living the life you want - including going on holidays.
https://www.care.com/c/for/cystic-fibrosis
Why you should join When you’re the parent of a child with cystic fibrosis (CF), connecting with other parents is an important part of the journey.The Kinsights cystic fibrosis support group is a safe and secure online community to get answers from parents, mentors, and experts on cystic fibrosis and connect with parents who can relate.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4104356/
Optimal management of cystic fibrosis (CF) is complex and time-consuming. The daily regimen for CF typically begins in the morning and ends at bedtime and may require an investment of over an hour a day on the part of both parent and child.Cited by: 5
https://clairesplacefoundation.org/programs/outreach-program/
Claire’s Place Foundation has several families standing by as Support Families for newly diagnosed or isolated families looking for support. If you are interested in becoming a support family or are in need of a family to speak with, please send an email to [email protected] and we will respond with more information.
https://www.cff.org/Life-With-CF/Caring-for-a-Child-With-CF/
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
http://cysticfibrosis.com/
CysticFibrosis.com supports the largest and oldest global Cystic Fibrosis community on the web, founded in 1996, comprising patients, caregivers, healthcare professionals and industry service providers. In addition to the forums, the site contains information on clinical trials, gene therapy, testing, associations, research and events.
https://www.dailystrength.org/group/cystic-fibrosis
Cystic Fibrosis Support Group. Cystic fibrosis, (CF) is a common hereditary human disease which affects many different parts of the body, including the lungs, pancreas, gastrointestinal tract, reproductive organs, and sinuses. This support group is …
https://www.chop.edu/services/cystic-fibrosis-parent-advisory-board
CHOP's CF Parent Advisory Board is a group of parents who work with Cystic Fibrosis Center staff and Hospital leadership to enhance medical care and quality of life for children with cystic fibrosis and their families.
How to find Cystic Fibrosis Parent Support information?
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