Searching for Cadasil Support information? Find all needed info by using official links provided below.
https://www.facebook.com/groups/cadasilsupport/
CADASIL support has 2,997 members. A group for sufferers, supporters and those who are curious about this syndrome. CADASIL (Cerebral Autosomal Dominant...
http://www.cadasilfoundation.org/
This forum was established in 1997. This support forum is for patients, spouses, parents, families and friends all bound together by the common experience of CADASIL. CADASIL Caregivers Since CADASIL has so many different symptoms, it is impossible to find a caregivers group just for CADASIL.
http://www.cadasilfoundation.org/coping.html
Coping and Support . How Others Cope These are families who has shared their experiences with how they deal with CADASIL Support Group This forum was established in 1997. This support forum is for patients, spouses, parents, families and friends all bound …
http://cadasilsupportuk.co.uk/
CADASIL- Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy, is the most common form of hereditary stroke disorder, and is thought to be caused by mutations of the Notch 3 gene on chromosome 19.
https://curecadasil.org/cadasil-support-resources/
CADASIL “At-Risk” Support Group on Facebook: Closed group for anyone who has a biological family member with a CADASIL diagnosis but has not yet been tested personally. NO diagnosed patients are allowed in this group so that members can talk freely about their options and opinions regarding testing…or not testing.
The mission of the cureCADASIL is to raise awareness of CADASIL, ensuring it will be universally recognized and understood by the medical community, enabling patients to be correctly diagnosed. We are dedicated to helping all touched by CADASIL, improving education available on CADASIL and promote and support research for this rare disease.
https://rarediseases.info.nih.gov/diseases/1049/cadasil
53 rows · Jun 04, 2018 · Supportive care, including practical help, emotional support, and counseling, …
https://www.thisiscadasil.org/
Been told you may have CADASIL? Been diagnosed with CADASIL? This site helps you, your family and your doctor understand what Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy (CADASIL) is and how it. Includes links to a range of other CADASIL sites and Facebook support groups.
https://www.facebook.com/cadasilsupportuk/
Cadasil Support UK - Raising Awareness. 401 likes. CADASIL is an abbreviation for a long name describing a rare hereditary form of stroke (Cerebral AutosomalDominant Arteriopathy with Subcortical...5/5
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