Blepharospasm Support

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Support available for patients with blepharospasm - BEBRF ...

    https://www.blepharospasm.org/patient-support.html
    Patient support. The BEBRF provides support for patients in various ways. From this page you can learn about the BEBRF itself, and also find out about support groups, meetings, available documents and papers, and other relevant information. Benign Essential Blepharospasm Research Foundation; Request information packet (PDF mail-in form)

Blepharospasm Support Groups

    https://www.blepharospasm.org/blepharospasm-support-groups.html
    Blepharospasm Support groups Updated October 27, 2012 At the present time, the following are the only support groups we are aware of which are specifically targetted to blepharospasm. If you know of other groups, please notify BEBRF Webmaster.

Blepharospasm: Information, Treatment, Patient Support ...

    https://www.blepharospasm.org/
    Blepharospasm is a neurological condition characterized by forcible closure of the eyelids. The purpose of the Benign Essential Blepharospasm Research Foundation (BEBRF) is to undertake, promote, develop and carry on the search for the cause and a cure for benign essential blepharospasm and other related disorders and infirmities of the facial musculature.

Blepharospasm Support Groups in USA

    https://www.blepharospasm.org/blepharospasm-support-groups-usa.html
    Blepharospasm Support groups in USA Updated December 11, 2019 Changes December 11, 2019 The Benign Essential Blepharospasm Research Foundation consists of a head office located in Beaumont, Texas and three * districts If you click on your state below, you will be taken to addresses and contact persons for local groups.

Support group meetings and symposiums about blepharospasm

    https://www.blepharospasm.org/blepharospasm-meetings.html
    Blepharospasm Symposiums and Support Group Meetings. Updated December 11, 2019. BEBRF Symposiums BEBRF Support Group Meetings Blepharospasm Support Groups Other blepharospasm meetings Form for submitting meeting information to be posted here. BEBRF Symposiums In 2020, the Annual Symposium will be held in Philadelphia, PA, Date TBA ...

Blepharospasm frequently asked questions (FAQ)

    https://www.blepharospasm.org/blepharospasm-faq.html
    Botulinum toxin is currently the treatment of choice for blepharospasm. When injected into muscles, it temporarily weakens the muscles. It is approved for use in over 60 countries.

Contact the Benign Essential Blepharospasm Research Foundation

    https://www.blepharospasm.org/contact-us.html
    Benign Essential Blepharospasm Research Foundation (BEBRF) Home : Blepharospasm : Related disorders : Treatments : Patient support : The BEBRF : FAQ : Blepharospasm Research : Site Search: What's new Contact us Other ways to help fund BEBRF BEBRF on-line store On-line resources Medical Information Dystonia advocacy

Blepharospasm Dystonia Medical Research Foundation Canada

    https://dystoniacanada.org/about-dystonia/focal-dystonias/blepharospasm
    Blepharospasm may be referred to as a “cranial dystonia.” Cranial dystonia is a broad description of dystonia that affects any part of the head. Terms used to describe blepharospasm include: eye dystonia, cranial dystonia, adult onset focal dystonia. When blepharospasm occurs with dystonia in the face, the term Meige’s syndrome may be used.

Benign Essential Blepharospasm - NORD (National ...

    https://rarediseases.org/rare-diseases/benign-essential-blepharospasm/
    In the early stages, benign essential blepharospasm is characterized by frequent or forced blinking and eye irritation that is often worsened by certain stimuli including bright lights, fatigue, emotional tension, and environmental factors such as wind or air pollution.



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