Bladder Exstrophy Epispadias Support

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Bladder Exstrophy and Epispadias Boston Children's Hospital

    http://www.childrenshospital.org/conditions-and-treatments/conditions/b/bladder-exstrophy-and-epispadias
    How we care for bladder exstrophy and epispadias The Boston Children's Hospital Bladder Exstrophy Program is dedicated to providing exceptional pediatric care. Our team include physicians, nurses, social workers and child life specialists who will care and support you and your child at every step from diagnosis through treatment , and even after your child returns home.

UCSF Department of Urology Epispadias and Exstrophy

    https://urology.ucsf.edu/patient-care/children/genital-anomalies/epispadias-and-exstrophy
    Children with bladder exstrophy/epispadias can have normal lives with normal life expectancy. Important Links: Association for the Bladder Exstrophy Community. International network. Founded 1991. Mutual support for persons affected by bladder exstrophy including: parents of children with bladder exstrophy, adults, healthcare professionals and ...

Bladder Exstrophy Contact

    https://contact.org.uk/advice-and-support/medical-information/conditions/b/bladder-exstrophy/
    The exstrophy epispadias complex is a spectrum of disorders ranging in severity from epispadias through bladder exstrophy to cloacal exstrophy. All three and their variants are rare congenital abnormalities, which affects boys more frequently than girls.

Bladder Exstrophy - Cancer Therapy Advisor

    https://www.cancertherapyadvisor.com/home/decision-support-in-medicine/pediatrics/bladder-exstrophy/
    Epispadias is the least severe variant of the exstrophy complex. The bladder remains on the inside of the body, but the genitalia are incompletely fused ventrally. In boys, the pubis may be wider than normal and the penis will be opened on the ventral side.

Annual Meeting - Support Group Bladder Exstrophy ...

    https://www.bladderexstrophy.com/event/annual-meeting-support-group-bladder-exstrophy-epispadia/
    The 2020 B.E.S.T. (Bladder Exstrophy Support Team) Campout » A-BE-C The Association for the Bladder Exstrophy Community (A-BE-C) is committed to ensuring that all who are affected by bladder exstrophy have the opportunity to realize their greatest life purpose and potential.



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