Searching for Anophthalmia Support information? Find all needed info by using official links provided below.
http://www.anophthalmia.org/
For the support group for families and individuals dealing with anophthalmia and/or microphthalmia. The site has stories, medical information and a parents support forum.
https://www.hxbenefit.com/anophthalmia.html
Jan 09, 2013 · Anophthalmia Support Groups Anophthalmia, also referred to as Anophthalmos, is a congenital defect that leads to absence of the eyes in a newborn. It is a very rare condition characterized by the lack of the ocular tissue and the globe of the eye.
https://www.cdc.gov/ncbddd/birthdefects/anophthalmia-microphthalmia.html
Dec 05, 2019 · International Children’s Anophthalmia Network external icon The International Children’s Anophthalmia & Microphthalmia Network is a group of families and professionals dedicated to lending support to individuals who want to learn more about microphthalmia and anophthalmia. References
https://www.nei.nih.gov/learn-about-eye-health/eye-conditions-and-diseases/anophthalmia-and-microphthalmia
Jun 26, 2019 · The specialist in prosthetic diseases for the eye will make conformers, plastic structures that help support the face and encourage the eye socket to grow. As the face develops, new conformers will need to be made. A child with anophthalmia may also need to use expanders in addition to conformers to further enlarge the eye socket.
http://www.wonderbaby.org/maps
Jan 25, 2017 · MAPS will provide parent to parent support to others raising children with microphthalmia and/or anophthalmia. By sharing a wide variety of information, MAPS strives to empower parents and reduce the overwhelming feeling of isolation that is all too common when a diagnosis of microphthalmia or anophthalmia is confirmed. MAPS Family Stories
https://contact.org.uk/advice-and-support/medical-information/conditions/a/anophthalmia/
MACS (Microphthalmia, Anophthalmia and Coloboma Support) Helpline: 0800 169 8088 Email: [email protected] www.macs.org.uk. The Society is a Registered Charity in England and Wales No.1161897. It provides information and support for the families of children born without eyes or with underdeveloped eyes.
https://ghr.nlm.nih.gov/condition/sox2-anophthalmia-syndrome
Oct 29, 2019 · SOX2 anophthalmia syndrome is a rare disorder characterized by abnormal development of the eyes and other parts of the body.. People with SOX2 anophthalmia syndrome are usually born without eyeballs (anophthalmia), although some individuals have small eyes (microphthalmia).The term anophthalmia is often used interchangeably with severe microphthalmia because individuals with no …
https://www.facebook.com/groups/123750425284/
MAPS will provide parent to parent support to others raising children with microphthalmia and/or anophthalmia. By sharing a wide variety of information, MAPS strives to empower parents and reduce...
MACS is the UK's national charity for children born without eyes or with underdeveloped eyes. We help over 2500 people across the UK, supporting them at each stage of their journey by providing peer support, practical help and opportunities to take part in life-changing activity trips.
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