Searching for Angelman Syndrome Support Services information? Find all needed info by using official links provided below.
https://www.angelman.org/resources-education/support-resources/
Advancing the awareness and treatment of Angelman syndrome through research, education and support for individuals with Angelman syndrome and their families, with the ultimate goal of finding a cure.
https://www.angelman.org/make-an-impact/shop-and-support-asf/
The Angelman Syndrome Foundation is the largest non-governmental funder of Angelman syndrome-specific research. It is our hope that these funded researchers, and their collaborators and peers, will bring forth new discoveries that ultimately lead to treatments and a cure.
https://angelmansyndromenews.com/2019/11/01/information-about-angelman-syndrome-support-groups/
Nov 01, 2019 · Support groups can offer a sense of community and be a great information resource for caregivers of patients with rare diseases such as Angelman syndrome. Caring for a child or relative with a rare disorder such as Angelman syndrome can be challenging, with information hard to find about the disease or doctors who specialize in treating it.
https://www.angelmanuk.org/what-is-angelman-syndrome/faqs/
With Angelman Syndrome, there are two professionals who most typify the role of case manager – the GP who determines that certain specialists are needed then refers the patient on to them. They then provide the follow up support on an ongoing basis typical of a case manager.
https://www.nhs.uk/conditions/angelman-syndrome/
Angelman syndrome is a genetic condition that affects the nervous system and causes severe physical and learning disabilities. A person with Angelman syndrome will have a near-normal life expectancy, but they will need support throughout their life.
https://www.cidd.unc.edu/Angelman-Syndrome/clinic-services.aspx
Overview of Clinical Services Angelman syndrome is a genetic disorder characterized by developmental delay, speech impairment, severe intellectual disability, microcephaly, seizures, movement disorder and a happy demeanor with frequent laughter.
https://ghr.nlm.nih.gov/condition/angelman-syndrome
Oct 15, 2019 · Angelman syndrome is a complex genetic disorder that primarily affects the nervous system. Characteristic features of this condition include delayed development, intellectual disability, severe speech impairment, and problems with movement and balance (ataxia).
https://www.angelman.org.nz/
CONNECTION & SUPPORT: We connect and support NZ families by encouraging and assisting with regional gatherings and fundraising activities across the country. [For free and confidential support services, s ee Parent to Parent.] ADVOCACY: The Angelman Network advocates on behalf of families and those with Angelman Syndrome in NZ.
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