Achondroplasia Support Organizations

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Achondroplasia - NORD (National Organization for Rare ...

    https://rarediseases.org/rare-diseases/achondroplasia/
    Socialization: Patients with achondroplasia may encounter difficulties in socialization and school adjustment. Support groups (such as Little People of America) can help assist families with these issues through peer support, personal example, and social awareness programs.

Organizations: Are there good support groups for ...

    https://www.thinkgenetic.com/diseases/achondroplasia/organizations/106
    Are there good support groups for achondroplasia? There are some great support groups available for people with achondroplasia and their families. There are many support groups that serve different countries and regions throughout the world. A few are listed below. Little People of America;

Dwarfism Support Organizations

    https://www.lpaonline.org/dwarfism-support-organizations
    Dwarfism Support Organizations and Groups. LPA is committed to providing a database of links that is accurate, up to date and comprehensive. However, we are unable to …

Achondroplasia (Dwarfism) Support Groups Online ...

    https://www.dailystrength.org/group/achondroplasia-dwarfism
    Achondroplasia (Dwarfism) Support Group. Achondroplasia is a type of genetic disorder that is a common cause of dwarfism. Only one copy of the gene needs to be present for the disorder to occur. People with achondroplasia have one normal copy of the fibroblast growth factor receptor 3 gene and one mutant copy.

Achondroplasia Parents Support Group - Care.com Community

    https://www.care.com/c/for/achondroplasia
    Talk to Parents Like You Kinsights is a community of parents that gives you the support, resources, and advice you need. After signing up, you’ll join our group for parents of children with achondroplasia and connect with parents that have been in your shoes before.

Achondroplasia Genetic and Rare Diseases Information ...

    https://rarediseases.info.nih.gov/diseases/8173/achondroplasia
    61 rows · Dec 20, 2017 · Achondroplasia is a disorder of bone growth that prevents the changing of …

Achondroplasia - Wikipedia

    https://en.wikipedia.org/wiki/Achondroplastic_dwarfism
    Achondroplasia is a genetic disorder that results in dwarfism. In those with the condition, the arms and legs are short, while the torso is typically of normal length. Those affected have an average adult height of 131 centimetres (4 ft 4 in) for males and 123 centimetres (4 ft) for females. Other features include an enlarged head and prominent forehead.Complications: Ear infections, hyperlordosis, back pain, …

Achondroplasia - Little People UK

    https://littlepeopleuk.org/information-about-dwarfism-conditions/types-of-dwarfism/achondroplasia
    Genetics of Achondroplasia. If there is no history of Achondroplasia in the family, Achondroplasia can be p assed on by one parent (dominant) as the result of a mutation; If one parent has Achondroplasia, there is a 50% chance Achondroplasia can be passed on to children

List of dwarfism organisations - Wikipedia

    https://en.wikipedia.org/wiki/List_of_dwarfism_organisations
    List of dwarfism organisations. Jump to navigation Jump to search. List of dwarfism organizations around the world. Universal. Little People of the World Corporation (USA Based) https://www.littlepeopleoftheworld.org ... Federal Support Association for Small People (VKM) Association for Small People and their Families (BKMF)

Little People of America

    https://www.lpaonline.org/
    Little People of America (LPA) is a nonprofit organization that provides support and information to people of short stature and their families. LPA is only able to continue our work with support from members, friends and family.



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