Searching for Aarskog Syndrome Support information? Find all needed info by using official links provided below.
https://rarediseases.org/organizations/aarskog-syndrome-parents-support-group/
The Aarskog Syndrome Parents Support Group (ASPSG) is a non-profit, self-help organization dedicated to providing information and support to parents of children with Aarskog syndrome. This is a rare genetic disorder characterized by distinctive facial abnormalities, unusually small hands, genital abnormalities, short stature, mild mental ...
https://medlineplus.gov/ency/article/001654.htm
Aarskog syndrome is a genetic disorder that is linked to the X chromosome. It affects mainly males, but females may have a milder form. The condition is caused by changes (mutations) in a gene called "faciogenital dysplasia" ( FGD1 ).
https://www.thinkgenetic.com/diseases/aarskog-syndrome/organizations/156
What does it mean to have inherited a variant in the gene for Aarskog syndrome? How common is Aarskog syndrome? Should people with Aarskog syndrome see any medical specialists? Can people with Aarskog syndrome use growth hormone to help them grow? How does someone get tested for Aarskog syndrome?
https://contact.org.uk/advice-and-support/medical-information/conditions/a/aarskog-syndrome/
The Aarskog Foundation UK aims to provide support to all those affected by Aarskog Syndrome, their friends, families and carers. They provide information, raise awareness of the condition and aim to bring families together.They also have different Facebook Groups to support families and professionals.
https://www.nicklauschildrens.org/genetic/aarskog-syndrome
The MAGIC Foundation for Children's Growth is a support group for Aarskog syndrome and can be found at www.magicfoundation.org. Outlook (Prognosis) Some people may have mild degrees of mental slowness, but affected children usually have good social skills.
https://www.aarskogsyndromefoundation.co.uk/
The Aarskog Foundation. We are the worlds largest international parent led, patient Charity for the X-linked Rare Disease Aarskog Syndrome. The lives of around 0.4 per million people across the world are living with this Rare Disease, which progresses into a serious life long condition of …
https://ghr.nlm.nih.gov/condition/aarskog-scott-syndrome
Oct 15, 2019 · Aarskog-Scott syndrome is a genetic disorder that affects the development of many parts of the body. This condition mainly affects males, although females may have mild features of the syndrome. This condition mainly affects males, although females may have mild features of the syndrome.
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