Aarskog Syndrome Support

Searching for Aarskog Syndrome Support information? Find all needed info by using official links provided below.


Aarskog Syndrome Parents Support Group - NORD (National ...

    https://rarediseases.org/organizations/aarskog-syndrome-parents-support-group/
    The Aarskog Syndrome Parents Support Group (ASPSG) is a non-profit, self-help organization dedicated to providing information and support to parents of children with Aarskog syndrome. This is a rare genetic disorder characterized by distinctive facial abnormalities, unusually small hands, genital abnormalities, short stature, mild mental ...

Aarskog syndrome: MedlinePlus Medical Encyclopedia

    https://medlineplus.gov/ency/article/001654.htm
    Aarskog syndrome is a genetic disorder that is linked to the X chromosome. It affects mainly males, but females may have a milder form. The condition is caused by changes (mutations) in a gene called "faciogenital dysplasia" ( FGD1 ).

Organizations: Are there any support groups for Aarskog ...

    https://www.thinkgenetic.com/diseases/aarskog-syndrome/organizations/156
    What does it mean to have inherited a variant in the gene for Aarskog syndrome? How common is Aarskog syndrome? Should people with Aarskog syndrome see any medical specialists? Can people with Aarskog syndrome use growth hormone to help them grow? How does someone get tested for Aarskog syndrome?

Aarskog syndrome Contact

    https://contact.org.uk/advice-and-support/medical-information/conditions/a/aarskog-syndrome/
    The Aarskog Foundation UK aims to provide support to all those affected by Aarskog Syndrome, their friends, families and carers. They provide information, raise awareness of the condition and aim to bring families together.They also have different Facebook Groups to support families and professionals.

Aarskog syndrome Nicklaus Children's Hospital

    https://www.nicklauschildrens.org/genetic/aarskog-syndrome
    The MAGIC Foundation for Children's Growth is a support group for Aarskog syndrome and can be found at www.magicfoundation.org. Outlook (Prognosis) Some people may have mild degrees of mental slowness, but affected children usually have good social skills.

The Aarskog Foundation - Home

    https://www.aarskogsyndromefoundation.co.uk/
    The Aarskog Foundation. We are the worlds largest international parent led, patient Charity for the X-linked Rare Disease Aarskog Syndrome. The lives of around 0.4 per million people across the world are living with this Rare Disease, which progresses into a serious life long condition of …

Aarskog-Scott syndrome - Genetics Home Reference - NIH

    https://ghr.nlm.nih.gov/condition/aarskog-scott-syndrome
    Oct 15, 2019 · Aarskog-Scott syndrome is a genetic disorder that affects the development of many parts of the body. This condition mainly affects males, although females may have mild features of the syndrome. This condition mainly affects males, although females may have mild features of the syndrome.



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