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Trisomy 18 is a life-threatening disorder that impacts about 1 out of every 2000 pregnancies in the U.S. Usually diagnosed in pregnancy, Trisomy 18 steals many dreams, but the Trisomy 18 Foundation helps parents create new dreams for their child and for their families.
The Support Organization for Trisomy 18, 13, and Related Disorders (SOFT) is a voluntary, non-profit network consisting of affected families and professionals who are involved in the care of individuals with trisomy 18, trisomy 13, and other related disorders (e.g., other chromosomal abnormalities involving the duplication of genetic material).
SOFT has provided trisomy 18 & trisomy 13 information, resources, support and an annual conference to families since 1980.
Trisomy 18 Foundation . . . Accelerating Research. Empowering Families. The mission of the Trisomy 18 Foundation is to improve the health outcomes of families who receive a Trisomy 18 diagnosis for their child through national leadership in accelerating progress in biomedical research, patient education, family support, and advocacy.
Trisomy 18 (Edwards Syndrome) Support Group. Trisomy 18 or Edwards Syndrome is a genetic disorder. Edwards Syndrome can result in characteristic physical abnormalities and significant developmental delays. For this reason a full-term Edwards syndrome baby may exhibit the breathing and feeding difficulties of a premature baby.
Where can I learn more about Trisomy 18? What are some resources to help me capture and remember my child with Trisomy 18? What organizations are out there to help parents of a child with Trisomy 18 with the perinatal period? Where do I find other families with a child with Trisomy 18? Will babies with Trisomy 18 require surgery?
Trisomy Support Groups Hover over the links below for information, and click the link to visit the website, or email if there is no website. Please note, however, that we have no control over the nature, content or availability of those sites.
Oct 29, 2019 · Trisomy 18 occurs in about 1 in 5,000 live-born infants; it is more common in pregnancy, but many affected fetuses do not survive to term. Although women of all ages can have a child with trisomy 18, the chance of having a child with this condition increases as a woman gets older.
Trisomy 18, also known as Edward's Syndrome, is a chromosomal abnormality that often results in stillbirth or an early death of an infant. Learn more about the symptoms, causes, diagnosis, and ...Author: Stephanie Watson
Some infants will be able to survive to be discharged from the hospital with home nursing support to assist with care by the parents. And although 10 percent or more may survive to their first birthdays, there are children with Trisomy 18 that can enjoy many years of life with their families, reaching milestones and being involved with their ...
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